Help us make a difference.

This group shares informative, helpful information about MEF2C Related Disorders with clinicians, researchers, families and the public.

This group ensures our connections with researchers studying MEF2C remain strong, and stays on top of the latest developments for MEF2C patients. This group also owns our strategy for data preparedness for clinical trials.

This group connects with and supports families that have an MEF2C diagnosis.

This group plans and supports fundraising events and campaigns and cultivates donor and grant opportunities.

This group develops our presence on the web and in print, and creates engaging and helpful written and designed materials. They also support events and gatherings.

This group partners with other MEF2C global organizations to ensure positive and productive relations. They also meet with other patient advocacy groups in an effort to build awareness and glean and recommend best practices.